This is a soft place to land for families, friends and professionals
that have been touched by someone with Rett Syndrome.

We are a group of people that have come together to become part of a solution.
 The solution is to find a cure for Rett Syndrome, support families of girls with Rett
Syndrome(RS) and make sure that professionals that treat our girls have all the
info they need to help us help our girls have the best quality of life.

1. To give support to other families, caregivers, friends and professionals that are
or have been touched by someone with Rett Syndrome.

2. Awareness! If people know about Rett Syndrome and how it affects the person,
they cannot sit and do nothing. They will help in fundraisers in many different ways.
So yes, awareness equals help for research!

3. Research! Just in the last 10 years, the outlook on Rett Syndrome has changed
DRAMATICALLY! In 1999, the gene was found. In 2007 an announcement was
made that even the scientists were shocked....the mice were cured. That means,
 in the lab, the mice were made to have RS. Then the scientists injected a 'medicine'
 that cured the mice. Even the sickest of the mice were cured. It’s our girls turn!

 
We have 3 organizations  that  we support for Research. Please take a look at their record and progress:

*IRSF, the International Rett Syndrome Foundation IRSF is the largest private source of funds for biomedical and clinical research on Rett syndrome. The Foundation directs 96% of each dollar donated directly to program services. All donations specifically earmarked for research will be honored.  Look at their record and progress:  http://rettsyndrome.org/
*RSRT, Rett Syndrome Research Trust is intensively focused on the development of treatments and cures for Rett Syndrome and related MECP2 disorders. The strength of the Trust is based on the guidance of founders and advisors who are largely responsible for the major advances in Rett research over the past decade.  This is what they are up to: http://www.rsrt.org/
*The UAB Rett Center is composed of a multi-disciplinary team of health professionals directed by Alan Percy, MD, and provides care and education to families of children of all ages, females and males with Rett syndrome or with MECP2 mutations. The UAB Rett Center is one of the few centers in the United States that specializes in the diagnosis and care of individuals with Rett Syndrome. The clinic provides care for families nationwide and well as from around the world.  Check out Dr Alan Percy's work:  http://circ-uab.infomedia.com/content2.asp?id=105003 

 We truely want a cure for our girls.  Until that happens, we need the best information possible to help our girls with their health, education and more.